Saturday, April 25, 2009

What's wrong with Jack...

A lot of you who follow Facebook know that Jack is sick.

I wanted to write about it on my blog because, quite frankly, I need to get it out somehow. The stress of the last two days is wearing on me, and writing it all down will hopefully help a little.

On Thursday Jack developed a rash on his stomach and back. I didn't think much of it - I thought it was a reaction from wearing too much sunscreen or something.

By Thursday night he had a low grade fever - nothing too serious.

On Friday morning the rash had faded quite a bit and his fever was gone. So Kurt and I both went to work and sent Jack to daycare.

At about 11 on Friday morning I got a call that Jack needed to be picked up. His fever had returned.

I was shocked when I saw him.

His cheeks, ears and the palms of his hands were dark red - almost purple.

The rash had returned. It was darker and had spread.

His ears looked as though they were starting to blister.

His cheeks were peeling.

His hands were very swollen.

His fever was 102.

We took him straight to the doctor.

The doctor examined him for several minutes and kept asking us if he'd eaten anything new, if we'd starting a new detergent, etc. All No.

She asked to look at his feet and I was suprised to see that they were as swollen as his hands. The bottoms of his feet were as red as the palms of his hands.

She said his throat was "fiery red."

She looked concerned - so of course I was concerned.

I could tell she was not telling us everything. It's very frustrating when you know someone's not telling you the whole story. Your imagination immediately goes to all the dark places. She mentioned that it looks like Kawasaki's Disease - but will have to wait for the test results.

She ordered a bunch of blood work, a throat culture and a chest x-ray.

The doctor told us to take him to urgent care on Saturday if the rash/fever/swelling are still there.

So Friday was a very rough day.

The blood draw was the worst. It took both of us to hold him down. They missed the vein the first time - but were able to find it without sticking him again. But not before Jack vomitted all over himself. It was bad. And they took so much blood! 4 vials and a bottle that looked like a miniature Coke bottle.

Throat culture was negative for strep. Chest x-ray was negative for pneumonia. The doctor called us at about 8:30 last night to let us know that his blood culture was negative for bacterial infections and that his white count was good. The news on his white count was especially good because cancer was a concern.

On Saturday morning, the fever/rash/swelling were all present and accounted for. So off to urgent care we went. The swelling had begun to spread up his legs and there was swelling in his groin as well.

The doctor at the urgent care center told us that everything points to Kawasaki's Disease - but they don't know for sure. Kawasaki's is still very new - they don't know what causes is and the only way they can diagnose it is by ruling everything else out.

She did say that if he still has a fever on Monday - we should plan for a hospital trip.

Kawasaki's is treated with IV antibiotics and asprin therapy.

I don't know much about it - I'm trying to search to much on the internet because my experiences have told me that googling symptoms is NEVER a good idea...

It seems like every couple hours or so something new pops up. Like this afternoon Jack all of sudden fell down and said he couldn't walk anymore. He said his feet hurt. At first I thought he just wanted to be held - but when he wouldn't even walk to the coffee table to get gummi-savers, I knew he really couldn't walk.

Several hours later, his feet broke out in a fresh rash - this one was like blisters - and they hurt to the touch. They were big too - one was about the size of a nickel.

I'm tired.

I'm scared.

I'm frustrated.

I'm not coping well.

I ate almost all of the Easter Candy left in both kids' Easter Baskets.

I keep snapping at Hope.

I keep thinking the worst.

If you have a chance, please say a prayer for Jack.

I'm hoping that Monday holds the answers - but Monday seems so far away...


johnsonandjohnson said...

thanks for writing it out. I know what it's like to think the worst---I'm praying for Jack's symptoms/health and for your peace of mind.

Will continue to lift Jack up in prayer.

Christine said...

hey girl- i am praying for Jack and that he will be completely healed, I'm praying for you and Kurt that God will give you peace, comfort and rest and I am also praying for the doctor's that they will have wisdom.
let me know if i can do anything for you-
luv u,
christine s

Lyn said...

Oh my goodness! We'll be praying for sweet little Jack - and for you and Kurt, too. Sure hope he is better soon. Thanks for taking the time to share.

Anonymous said...

Trust your gut. Don't wait til Monday if you are in doubt. Go to a different doc or ER if you're instinct tells you to. I had a similar experience with my daughter; I walked out of one ER & went to another hospital b/c I wasn't happy with what they were telling me. At the 2nd hospital, she was rushed into emergency surgery for a wound infection. She would have died had I not trusted my instinct. I'm sorry - I don't want to scare you, but mother's instinct is never wrong. Lil Jack is in my prayers. Please let me know if there is anything I can do to help. Be strong. . .

Don said...

Sure hate to hear this, Heidi. I can only imagine your deep worry and concern. We will certainly be praying for Jack and for all of you. If there is anything at all you need, we're here for you.

Diane Nix said...

sorry, didn't mean to post anonymous!! =)

Jennifer LeTourneau said...

Heidi, will be praying for all of you. It's so scary when our kids are sick. Hang in there and keep us posted!

Kristi said...

Oh eyes are all teary. Poor Jack. I can't believe he's been so much. I knew it was bad, but not this bad. :(

It sounds like you are doing all the right things though. I agree with Diane...get to another doctor/hospital if you need to. If I had done that earlier with my girls last year, they probably wouldn't have been hospitalized. So yeah, trust your instincts.

I hope you can get some sort of rest tonight.

Can I just say this...I will put my phone by my bed tonight. I know it's hard to ask people for help...but if you FOR ANY ReASON...need help tonight...CALL ME. I will be right over! Okay???

rshstephens said...

Oh Heidi, I know your fears, I know your pain. Don't let the devil win and give in to those dark thoughts. That's how he works-- using our fears against us. Believe that Jack WILL be healed. We are all praying.
Rene (Harmon) Stephens

hbmommy said...

Heidi, I wish I had words to lift you up. You have been on my mind all weekend. I pray that Jack is able to begin treatment as soon as possible and heal. If there is anything you need, I know you have a list of people who are ready to jump if need be. Know that you are loved and that God is listening.

StephanieJ said...

Oh my goodness...thank you for sharing with us. We'll be praying for Jack's healing and your peace and rest for everyone.

We love you.

The Craftypigs said...

I agree, don't wait if you still have doubts. I have a friend who just took her kid in for a tummy ache and it was acute appendicitis and had surgery. Praying for Jack and you! Hang in there.

shana said...

I'll be praying for you and for Jack! My best friend's little guy was hospitalized for a few days with Kawasaki about 4 years ago. He was 1 at the time. He came out of it fine, but it was tough goin' for a while and was hard to get a diagnosis.

Hang in there!

Wendi said...

Our ladies' group will lift you all up in prayer. Love to you and your family.

VikingMom said...

Thanks for the update Heidi...I'll keep on praying for Jack (and all of you.) When you feel alone, please know that we're here if you need us for ANYTHING. Hugs to all of you.